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A family's 11-year wait for a correct diagnosis is renewing calls to improve care for people with Huntington's disease in Ireland. Relatives say repeated missed opportunities and poor coordination between medical services delayed the diagnosis, while experts warn that many families with the rare inherited condition still face similar challenges. Campaigners are urging Ireland's Health Service Executive (HSE) to introduce a national care pathway and specialist support so patients receive faster diagnosis, better treatment and coordinated care. Sometimes the hardest part of a rare disease isn't the illness-it's getting the right help in time.